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<>Although there are 2.1% Americans have Psoriasis, it is still very uncommon topic in the US society. Before I was diagnosed with Psoriasis, I did not know anything about this disease. I used to work in a large company for many years, almost know everybody in the company, if there are truly 2.1% Americans have Psoriasis, at least I should have heard about somebody have Psoriasis. But I did not. I guess people who get Psoriasis do not want to talk about it. People of course will be discriminated for their Psoriasis, this is easy to understand, visibally we are not normal.
<>There is a big difference between Americans and Chinese. Americans will usually not tolerate the skin lesion and will use any method to "treat" it. Most American who have Psoriasis will use steroid cream consistently for their life, until the steroid become ineffective, then they switch to something else. If you go to US psoriasis website, they all talk about the same thing, steroid, anthralin,coal tar,then PUVA,MTX,Soriatane, then ultimately biologic agent. MTX and Soriatane etc are typical western drugs used to suppress the immune system. If one take them for Psoriasis, one must be very very careful since they can produce remission for only about 3 to 6 months, after that, there will be a rebound if you stop taking them. So you have to take them forever for your life. How is that possible?
<>But I do have a relative who got Psoriasis in his eighties, he use steroid to treat it for many years, now he does not have any noticeable signs of Psoriasis. Of course he is still using his steroid cream frequently, but he is happy about the outcome.
<>This is the thing I could not understand, if there are 2.1% of population among the world who have Psoriasis, and Psoriasis is such a disabling disease, why I don't see many people on the street with Psoriasis? why I seldom hear from it? why doctors tell me it is nothing but a nuiance? It is so serious that I almost lost my capability to work for many months.
<>I then start to think whether my case is a very special case. Since most people who have Psoriasis only have very light symptom. There may be a misunderstanding, either doctors underestimate the seriousness of the disease, or we patient have exaggerated the seriousness of the disease. This is why I want to do this survey, trying to prove people here are almost all like me, whose psoriasis is serious. I ultimately want to prove thie following:
<>Even though Psoriasis is a lifelong disease, the particular skin lesion on our skin at this very moment at that very location will fade eventually. Some other new skin lesion will appear sooner or later, but that will fade also. With proper and careful handling,we may not have the skin lesion for a very long time, talking about more than 4 ot 5 years.
<>If it is such an infrequent and less serious thing, there is no need to over-worry about it.
<>I myself am not using any medicine ever sicne I realized the seriousness of the disease from the very beginning. I did use Clobetasol Propionate before I know the thing on my scalp is Psoriasis, for about one month, a very unfortunate thing to happen. Now I am recovering very slowly, most skin lesions are fading, but still very uncomfortable.
[此贴子已经被作者于2006-3-21 23:30:14编辑过] |
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