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标题: 国际银屑病协会（IFPA）简介 [打印本页]

作者: 天涯倦客 时间: 2009-12-3 11:58
标题: 国际银屑病协会（IFPA）简介
International Federation of Psoriasis Associations (IFPA)国际银屑病协会 The International Federation of Psoriasis Associations (IFPA) is a non profit organization made up of psoriasis associations from around the world. IFPA unites psoriasis associations so that their global campaign for improved medical care, greater public understanding and increased research will improve the lives of people who live with psoriasis and psoriatic arthritis and explore the challenges psoriasis presents to the international psoriasis community. Worldwide unity for people living with psoriasis . IFPA gives nonprofit psoriasis associations a global voice to campaign on behalf of people who have psoriasis and psoriatic arthritis. IFPA provides the unity that strengthens everyone's ability to support research that will someday find a cause and a cure for these diseases. (Five Fast Facts About IFPA ) The first and only unifying global voice that supports psoriasis associations in an area of ever increasing focus and high unmet need. An organization that conducts cost effective, successful and high quality programs which are bringing together psoriasis associations, healthcare professionals and healthcare industry as demonstrated in activities like World Psoriasis Day and World Psoriasis and Psoriasis Arthritis Conference. he global representative of 125 million people with psoriasis advocating for and responding to increased research in the area psoriasis, psoriatic arthritis and related diseases IFPA has helped establish and develop psoriasis associations in countries where they did not previously exist or they needed support  The majority of psoriasis associations around the world are members of IFPA IFPA Vision A world without human suffering from psoriasis. IFPA Mission To be the unifying global voice of all psoriasis associations, supporting strengthening and promoting their cause at an international level. IFPA GOALS SECURE universal access to treatment, to raise awareness and understanding of psoriasis and to change the treatment paradigm and end discrimination. GROW the IFPA national psoriasis association membership base to encompass all representative psoriasis associations. COOPERATE and become active partners with all relevant psoriasis and psoriatic arthritis stakeholder groups including medical associations, pharmaceutical companies and other relevant organizations. INITIATE and communicate all relevant market and clinical research in psoriasis, psoriatic arthritis and related diseases. [attach]12331[/attach]

作者: 天涯倦客 时间: 2009-12-3 12:10
Contact IFPA （联络方式） Annika Rastas , Director of the Secretariat （拉斯塔索伦斯坦秘书处主任）   International Federation of Psoriasis Associations - IFPA（国际银屑病协会） IFPA SECRETARIAT （IFPA秘书处） Box 5173  SE-121 18 Johanneshov （地址） SWEDEN （瑞典） E-mail: IFPA Secretariat  （电子邮箱：IFPA秘书处）

hone: +46 8 556 109 14  （电话：+46 8 556 109 14） Fax: +46 8 556 109 19    （传真：+46 8 556 109 19 ）

作者: dayu 时间: 2009-12-3 19:58
我想加入协会,怎么申请?

作者: 天涯倦客 时间: 2009-12-3 20:27
目前在中国还没有一个有患者成立的协会，也许是政策问题或者其他原因。 据我所知“互助论坛”就是最大的华语银屑病患者群体。

欢迎光临银屑病病友互助网 (https://www.yxb365.com/)